Saturday, September 20, 2008
Sunday, June 29, 2008
Skyler the Director
Move over Marty Scorsese, Skyler told me all the different things to put in this video. He had a huge long list that he wanted me to video and show everyone. He even told me, "Write it down" like I wouldn't remember. (which I wouldn't have)...
Saturday, April 12, 2008
Saturday, February 23, 2008
Skyler stood up!
Big excitement today... Skyler stood up for the first time since before his surgery! He did very well. He was pretty nervous but once he was up, he stood up tall and smiled! He has never been able to stand on his own, but we need to try and get him to weightbear on his legs to keep muscles working right.
The folks in these pictures are Skylers long-time Physical Therapist Mindy holding him from behind, her student Stacey (who Skyler thinks is way cute), the ever present therapy dog Hootie, and me!
He had his Upper GI. It went well. He didn't aspirate or have any reflux during the test. The doctor said his stomach handled and moved the food well. He did aspirate a little on the swallow study so we are thickening his juice and he seems to be doing well with it. He still coughs but I think it is better. The doctors still do a lot of "hmmm" and don't have many answers for us in regards to his coughing. Maybe they will have more answers/direction for us when we get the full report next week.
Starting next week, Skyler will start working with a kid in the counselor's office delivering messages to kids throughout the school. He will also spend part of his off hour on Mondays hanging out with another student. I'm sure Janet (Skylers Aide) will be close by if they need her. Skyler said that he is excited to hang out with them. He knows both of the kids and likes them. One of kids went to Zerger Elementary with him. Hopefully it will go well. Maybe they can give us some "kid" language to put on his talker, clean "kid" language! :-)
I suppose the really big news today was.. Kate Snow was on Good Morning America! Skyler is always looking for her. She has been on all of the Networks, one of those anchor/reporters you never know when she will be on. Well, Skyler found her this morning during his channel surfing!! Very Exciting!!! Ahh, the little things in life!
Skyler is on another video tape mission. He has two pages of "script" that he wants on a new tape. Looks like we will be busy recording and editing this weekend! Always interesting!!
Take care
Have a great weekend!
Kathy and Chris
The folks in these pictures are Skylers long-time Physical Therapist Mindy holding him from behind, her student Stacey (who Skyler thinks is way cute), the ever present therapy dog Hootie, and me!
He had his Upper GI. It went well. He didn't aspirate or have any reflux during the test. The doctor said his stomach handled and moved the food well. He did aspirate a little on the swallow study so we are thickening his juice and he seems to be doing well with it. He still coughs but I think it is better. The doctors still do a lot of "hmmm" and don't have many answers for us in regards to his coughing. Maybe they will have more answers/direction for us when we get the full report next week.
Starting next week, Skyler will start working with a kid in the counselor's office delivering messages to kids throughout the school. He will also spend part of his off hour on Mondays hanging out with another student. I'm sure Janet (Skylers Aide) will be close by if they need her. Skyler said that he is excited to hang out with them. He knows both of the kids and likes them. One of kids went to Zerger Elementary with him. Hopefully it will go well. Maybe they can give us some "kid" language to put on his talker, clean "kid" language! :-)
I suppose the really big news today was.. Kate Snow was on Good Morning America! Skyler is always looking for her. She has been on all of the Networks, one of those anchor/reporters you never know when she will be on. Well, Skyler found her this morning during his channel surfing!! Very Exciting!!! Ahh, the little things in life!
Skyler is on another video tape mission. He has two pages of "script" that he wants on a new tape. Looks like we will be busy recording and editing this weekend! Always interesting!!
Take care
Have a great weekend!
Kathy and Chris
Friday, January 25, 2008
8 week checkup report
Good Morning!
I hope everyone is having a great Friday.
Skyler had his 8 week check-up and x-ray yesterday. See the attached x-rays. He still has a significant neck curve but they don't want to fix it. Hopefully it won't get worse.
All went well. Dr. Chang is pleased with his recovery and said the main issue right now will be fatigue. The surgery and healing takes a lot out of him and it usually takes 3 months to get back all of his energy. We haven't seen too much of that. Skyler has had a couple of days where he was tired but he has some many things he wants to control and do, he just doesn't have time to lie around!
He isn't as fragile now. But Dr. Chang said he still can't sky dive, jump on a trampoline or bungee jump!! Darn! :-) He can't ski for another 3 months so it looks like he will miss this ski season. Better to be safe than sorry.
Skyler was SO hoping he could go swimming, but Dr. Chang wants him to wait another month. Skyler was pretty bummed about that. He has been thinking about a pool we went to about 3 years ago in Boulder and was very anxious to go there this weekend. He told us all about the pool.
"When you were a kid (now he refers to himself as "You Are A Guy") we went to a warm pool where mom walks the dogs in Boler." It took us a while to figure out "Boler" was Boulder. of course it didn't help that he kept calling the pool the "Hanukka" pool. Where he got that, we have no idea!! Then I remembered the pool. He has an amazing memory. We have only been there once. It isn't the Hanukka pool it's East Boulder Community Pool. Oh well. I told him when he gets the A-OK to swim that is where we will go!
This week things went well, whew, and he is on the road to recovery. Most the time he acts like he never even had the surgery. Amazing!
Enjoy your weekend!
Kathy
X-rays pics from yesterday:
I hope everyone is having a great Friday.
Skyler had his 8 week check-up and x-ray yesterday. See the attached x-rays. He still has a significant neck curve but they don't want to fix it. Hopefully it won't get worse.
All went well. Dr. Chang is pleased with his recovery and said the main issue right now will be fatigue. The surgery and healing takes a lot out of him and it usually takes 3 months to get back all of his energy. We haven't seen too much of that. Skyler has had a couple of days where he was tired but he has some many things he wants to control and do, he just doesn't have time to lie around!
He isn't as fragile now. But Dr. Chang said he still can't sky dive, jump on a trampoline or bungee jump!! Darn! :-) He can't ski for another 3 months so it looks like he will miss this ski season. Better to be safe than sorry.
Skyler was SO hoping he could go swimming, but Dr. Chang wants him to wait another month. Skyler was pretty bummed about that. He has been thinking about a pool we went to about 3 years ago in Boulder and was very anxious to go there this weekend. He told us all about the pool.
"When you were a kid (now he refers to himself as "You Are A Guy") we went to a warm pool where mom walks the dogs in Boler." It took us a while to figure out "Boler" was Boulder. of course it didn't help that he kept calling the pool the "Hanukka" pool. Where he got that, we have no idea!! Then I remembered the pool. He has an amazing memory. We have only been there once. It isn't the Hanukka pool it's East Boulder Community Pool. Oh well. I told him when he gets the A-OK to swim that is where we will go!
This week things went well, whew, and he is on the road to recovery. Most the time he acts like he never even had the surgery. Amazing!
Enjoy your weekend!
Kathy
X-rays pics from yesterday:
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